Prevalence, predictors, and experience of food insecurity among individuals with inborn errors of metabolism Public Deposited

The purpose of this study was to identify the prevalence, predictors and experience of food insecurity among patients seen in the Oregon Health & Science University (OHSU) Metabolic Clinic. The OHSU Metabolic Clinic serves patients with IEMs residing throughout Oregon and southwest Washington. The OHSU Metabolic Clinic began screening for food insecurity in February 2016 using a validated 2-question screening questionnaire (3). The screening form also includes an additional, adapted version of the 2-question questionnaire to screen for food insecurity related specifically to medical formulas and low-protein medical foods. All patients who responded to the survey were provided with a handout with a list of food resources and assistance programs. A retrospective chart review of the OHSU electronic medical record was completed to review patient responses to screening questions and to record patient characteristics that may be associated with food insecurity. Additionally, a cohort of adult patients was recruited to complete a survey exploring the relationship between IEMs and food insecurity, quality of life, and overall financial burden.

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